Musings on my upcoming treatment
Back in 2009 I was admitted into my local hospital with Complex Regional Pain Syndrome in my right leg. I stayed in hospital for a total of six months and still suffered with the condition for a few...
View ArticleCare Plan in Place
Yesterday I went up to London for an appointment with my consultant. I went prepared with many questions, and was determined to get everything I needed done. I left the appointment feeling very happy...
View ArticleUpcoming Hospital Admittance
On Tuesday I wrote an email to my consultant, explaining that now my whole body was being affected by my dystonia and that I no longer knew what I was expected to do. I have tried to bring a number of...
View ArticleFrustration With Lack Of Help
Over the last couple of days I have not felt to great and my spasms have been awful. I have found myself going from being boiling hot one moment to shaking with cold the next, along with some...
View ArticleDisappointed & Disheartened
Yesterday I had my appointment up in London with my neurologist. I had been really looking forward to this appointment, as I wanted his opinion on a couple of things. Firstly on my new leg spasm and if...
View ArticleLeg/foot Dystonia
Instead of working steadily down the body for my blog posts I decided today to go straight on down to the leg/foot. This may have been influenced by todays spasms. For me, I class my leg/foot spasms as...
View ArticleExasperated
This week has been a complete rollercoaster of emotions. Beginning with excitement, this quickly turned into desperation and turmoil, concluding with frustration and nervousness. On Tuesday I attended...
View ArticlePositive Week
The other day I wrote about how negative the majority of my appointments have been recently.I am thrilled to say that this trend has not continued recently. Last week I attended a physiotherapy...
View ArticleReflection
When I saw my personal trainer Beckie the other day she pointed out to me that she had trained with me for a year now. Reflecting together on the progress I’ve made in the last year was a real eye...
View ArticleHydrotherapy
Today I had my first Hydrotherapy session, this was the first in a course of six. This morning I found myself feeling a mixture of emotions. Part of me was incredibly excited, I previously had...
View ArticleAn Exciting Month!
This month is full of opportunities that I never expected to experience. Towards the end of the month I’m going to Amsterdam for a few days with the university, followed by three weeks as an inpatient...
View Article
More Pages to Explore .....